Make your own free website on Tripod.com

Best Viewed with Browser Opened to Full Screen
Address Book

 GO HOMEHome 

Dragon E-mail

      Help / Tips      Help

Snap! Search

Web Options      

yahoo.comMetaCrawler Searchdog-pile search

Search Upcreek

Table of Contents

WildMind Reference DeskWildMind
Library

AskERIC

Medical Dictionary

MedLine

Rxlist.com

InfoPlease

Internet RefDesk

Internet Library

Research It

C/Net: A-Z List

Dictionary

Grammar/Style

Encarta

Britannica (wmind)

WildMind Maps

WildMind Timelines

WildMind Clipart

Version:  B1.0 

TestLab

Post-Polio disAbility Seniors Y2K = ME4U Help for Non-Profits Address Book Glossary Upcreek Bookstore

The Upcreek Address Book lists associations and organizations working for the common good, especially those who deal with disabilities and chronic or long term health problems. This list is offered for convenience and information only and does not indicate our knowledge of or recommendation of these organizations.  Please dip in your CoOp paddle to help us maintain accuracy and completeness by e-mailing corrections and additions.  For those of you affiliated with organzations like these, we also offer a page, Help for Non-Profits with support information about non-profit grants, fundraising, internet ideas, etc. We're all up the same creek.          
                                     Washington State Pacific NW
A B C D E F G H I J K L M
N O P Q R S T U V W X Y Z
waver-left.gif (1165 bytes)   Construction Site    Offered "as is" while we build.  Come back to see progress.anim_constcrane.gif (8282 bytes)

    Directories    
Nov98 Organizations: Neurological Disorders Names, addresses, and phone numbers for the organizations listed in this guide are accurate as of November 1998. If you are unable to reach a particular organization because of a change in phone number or address, please contact the National Institute of Neurological Disorders and Stroke, National Institutes of Health, Bethesda, MD 20892, and we will assist you.
  A A Top of Page
Jun98 AASK AASK America/Aid to Adoption of Special Kids. At AASK Midwest Adoption Exchange, we have made it our mission to find permanent, loving, adoptive homes for the children who wait. To date, AASK Midwest has matched over 1400 special needs children with adoptive families. 1025 N. Reynolds Rd.Toledo, OH 43615. Keywords: Children; Adoption (800) 232-2751 AASK e-mail

419-534-3350

fax 419-534-2995

Jun98 Access Group for Children of Vietnam Veterans (800) 821-8580
Jun98 ADAPT AMERICAN DISABLED for ATTENDANT PROGRAMS TODAY. Great Logo. There's no place like home, and we mean real homes, not nursing homes. We are fighting so people with disabilities can live in the community with real supports instead of being locked away in nursing homes and other institutions. Very active lobbying group. PO Box 9598 Denver, CO 80209 303/333-6698 Keywords: disAbility; seniors; nursing homes; home health care; attendants ADAPT e-mail
ADA Disability and Business Technical Assistance Ctrs. (800) 949-4232 (V/TTY)
Adventures in Movement for the Handicapped Inc. (800) 332-8210
Jun98 AgeNet UK site for aging people with disabilities. Keywords: Seniors
Al-Anon Family Group Headquarters, Inc. (800) 344-2666
Alcoholism and Drug Treatment Addiction Center (800) 383-4357
Alliance of Genetic Support Groups (800) 336-4363
Alzheimer's Disease Association (800) 621-0379
American Association for Vocational Instructional Materials (800) 228-4689
American Association of Kidney Patients (800) 749-2257
American Association on Mental Retardation (800) 424-3688
American Brain Tumor Association (800) 886-2282
American Burn Association (800) 548-2876
American Council of the Blind (800) 424-8666 (V/TDD)
American Diabetes Association (800) 582-8323
American Diabetes Association, Inc. (800) 232-3472
American Foundation for the Blind (800) 232-5463
American Kidney Fund (800) 638-8299
American Liver Foundation (800) 223-0179
American Lupus Society (800) 331-1802
American Paralysis Association (800) 526-3456
American Parkinson Disease Association (800) 223-2732
American Society for Deaf Children (800) 942-2732 (V/TDD)
American Trauma Society (800) 556-7890
Jun98 American with Disability Personal site. Good Links to wide variety of disability related government and private resources, equipment, etc.. Keywords: Government; Resources; Adaptive Devices; Adaptive Technology; personal site
Amyotropic Lateral Sclerosis Association (800) 782-4747
Arc (800) 433-5255
ARCH National Resource Center for Respite & Crisis care services (800) 473-1727
Association for Childhood Education International (800) 423-3563
Association on Higher Education and Disability (AHEAD) (800) 247-7752
Asthma and Allergy Foundation of America (800) 727-8463
  B B Top of Page
  C C Top of Page
Jun98 Californians for Disability Rights Together ... for access, for justice, for equality, for independence. Based in Davis, CA. Keywords: Independence; legal; advocacy; equality
Candlelighters Childhood Cancer Foundation (800) 366-2223
Carnegie Library for the Blind & physically handicapped (800) 242-0586
Jun98 CD Publications Since 1961, Newsletter Specialists in: Housing, Senior Issues, Community Development, Federal and Private Funding Reports, Minority Business, Business,Legal. Keywords: Funding; Grants; Grant Writing; Minorities; Legal
CDC National AIDS Clearinghouse (800) 458-5231 (English/Spanish)

(800) 243-7012 (TDD)

CDC National AIDS Hotline (800) 342-2437

(800) 344-7432 (Spanish) (800) 243-7889 (TDD)

Children (800) 922-1107
Children's Craniofacial Association (800) 535-3643
Children's Hospice International (800) 242-4453 (V/TDD)
Chronic Fatigue and Immune Dysfunction Syndrome Association (800) 442-3437
Clearinghouse for Rehabilitation and Technology Information (800) 638-8864

(800) 852-2892 (TDD)

Clearinghouse on Child Abuse and Neglect/Family Violence Information (800) 394-3366
Cleft Palate Foundation (800) 242-5338
Jun98 Colo. Easter Seals: Disability Colorado Easter Seals Disability Directory of resources (nationwide). Includes info for disabled farmers, sub-directories by type of disability, adaptive technology, etc. On same site as post-polio page. Keywords: Farmers; Adaptive Devices; Adaptive Technology
Cooley's Anemia Foundation (800) 221-3571

(800) 522-7222 (in NY)

Cornelia de Lange Syndrome Foundation (800) 223-8355

(800) 753-2357 (in CT)

Cystic Fibrosis Foundation (800) 344-4823
  D D Top of Page
Deafness Research Foundation (800) 535-3323 (V/TDD)

(212) 684-6559 (V/TDD) in NY)

  E E Top of Page
EAR Foundation (800) 545-4327
Epilepsy Foundation of America (800) 332-1000
Equal Employment Opportunity Commission (800) 669-3362

(800) 800-3302 (TDD)

ERIC Clearinghouse on Rural Education and Small Schools (800) 624-9120

(800) 344-6646 (V; in WV)

  F F Top of Page
FACES National Association for the Craniofacially Handicapped (800) 332-2373
Families of SMA (800) 886-1672
Family Survival Project (800) 445-8106
Federal Hill-Burton Free Hospital Care Program (800) 638-0742

(800) 492-0359 (in MD)

Feingold Association of the United States (800) 321-3287
  G G Top of Page
Gerber Consumer Information (800) 443-7237
Guide Dog Foundation for the Blind, Inc. (800) 548-4337
  H H Top of Page
Hadley School for the Blind (800) 323-4238
Healing (800) 762-3334
HEALTHSOUTH Rehabilitation Corporation (800) 768-0018
Hear Now (800) 648-4327 (V/TDD)
Hearing Information Center (800) 622-3277
HEATH Resource Center (800) 544-3284 (V/TDD)

(202) 939-9320 (V/TDD; in DC)

Hemophilia and AIDS/HIV Network for Dissemination of Information (800) 424-2634
HOSPICELINK (800) 331-1620

(203) 767-1620 (V; in CT)

HUD User (800) 245-2691
Human Growth Foundation (800) 451-6434
  I I Top of Page
Information (800) 394-3366
Jun98 International Ventilator Users Network (IVUN) no website found yet IVUN e-mail
  J J Top of Page
Job Accommodation Network (800) 526-7234 (V/TDD)

(800) 232-9675 (V/TDD; ADA Information)

Job Opportunities for the Blind (800) 638-7518

(410) 659-9314 (in MD)

John Tracy Clinic - hearing (800) 522-4582 (V/TDD)

(213) 748-5481 (in 213 area)

(213) 747-2924 (TDD; in 213

Just Say No International (800) 258-2766
  K K Top of Page
Kids on the Block - disability awareness (800) 368-5437
  L L Top of Page
Leukemia Society of America (800) 955-4572
Lighthouse National Center for Vision and Child Development (800) 334-5497

(212) 808-5544 (TDD)

LINC Resources, Inc. (800) 772-7372
Little People of America (800) 243-9273
Lupus Foundation of America (800) 558-0121

(800) 558-0231 (Spanish)

  M M Top of Page
Magic Foundation (800) 362-4423
Myasthenia Gravis Foundation (800) 541-5454 TDD
  N N Top of Page
Medico Head Injury System (800) 227-3824
National AIDS Hotline (800) 342-2437
National AIDS Information Clearinghouse (800) 458-5231
National Alliance for the Mentally Ill (800) 950-6264
National Alliance of Blind Students (800) 424-8666
National Association for Hearing and Speech Action (800) 562-6265
National Association for Sickle Cell Disease (800) 421-8453
National Association for the Dually Diagnosed (800) 331-5362
National Association of Parents of the Visually Impaired (800) 562-6265
National Audiovisual Center (800) 638-1300
National Cancer Information Service (800) 422-6237 (V; English/Spanish)
National Center for Research in Vocational Education (800) 762-4093
National Center for School Leadership (800) 643-3205
National Center for Stuttering (800) 221-2483

(800) 729-6686, (800)

National Center for Youth with Disabilities (800) 333-6293

(612) 624-3939 (TDD)

National Clearinghouse of Rehabilitation Training Materials (800) 223-5219 (V/TDD)
National Clearinghouse on Family Support and Children's Mental Health (800) 628-2696
National Committee for Citizens in Education Clearinghouse (800) 638-9675

(800) 532-9832 (Spanish)

National Down Syndrome Congress (800) 232-6372
National Down Syndrome Society (800) 221-4602
National Easter Seal Society (800) 221-6827

(312) 726-4258 (TDD)

National Eye Care Project (800) 222-3937
National Foundation for Consumer Credit (800) 388-2227
National Foundation for Facial Reconstruction (800) 422-3223
National Fragile X Foundation (800) 688-8765
National Head Injury Foundation (800) 444-6443
National Headache Foundation (800) 843-2256

(800) 523-8858

National Hearing Aid Society (800) 521-5247
National Hospice Organization (800) 658-8898
National Information Center on Orphan Drugs and Rare Diseases (800) 456-3505
National Information Clearinghouse for Infants with Disabilities and Life Threat (800) 922-9234 ext. 201 (V/TDD) (800) 922-1107 ext. 201 (V/TDD; in SC)
National Information System for Vietnam Veterans and Their Families (800) 922-9234 ext. 401 (V/TDD)

(800) 922-1107 disABILITY ext. 401 (V/TDD)

National Institute on Deafness and Other Communication Disorders Clearinghouse (800) 241-1044

(800) 241-1055 (TDD)

National Institute on Drug Abuse Helpline (800) 662-4357
National Jewish Center for Immunology and Respiratory Medicine LUNGLINE (800) 222-5864
National Literacy Hotline (800) 228-8813

(800) 552-9097 (TDD)

National Lymphedema Network (800) 541-3259
National Mental Health Association (800) 969-6642
National Multiple Sclerosis Association of America (800) 532-7667
National Multiple Sclerosis Society (800) 344-4867
National Neurofibromatosis Foundation (800) 323-7938
National Odd Shoe Exchange (800) 843-1964
National Organization for Albinism and Hypopigmentation (800) 473-2310
National Organization for Rare Disorders (800) 999-6673 (V/TDD)
National Parkinson Foundation (800) 327-4545
National Rehabilitation Information Center (800) 346-2742
National Rehabilitation Information Clearinghouse/ABLEDATA (800) 346-2742 (V/TDD)
National Resource Center on Child Sexual Abuse (800) 543-7006
National Respite Locator Services - 1700+ Agencies across the country (800) 773-5433
National Retinitis Pigmentosa Foundation (800) 638-2300
National Reye's Syndrome Foundation (800) 233-7393
National Society to Prevent Blindness (800) 331-2020
National Spinal Cord Injury Association (800) 962-9629
National Tuberous Sclerosis Association (800) 225-6872
Jun98 Natl Academy of Child Development 2 The National Academy for Child Development, is an international organization of parents and professionals dedicated to helping children and adults reach their full potential. The over 15,000 clients served by NACD have come to us with labels including; Learning Disabled, Dislexic, Distractible, ADD, ADHD, Hyperactive, Down Syndrome, Gifted, etc
North American Riding for the Handicapped Inc. (800) 369-7433
Jun98 Not Dead Yet Website of an organization opposing euthanasia for the disabled, and the assisted suicide movement in general. Good information. News articles on quality of life of Kevorkian's "patients", legal euthanasia cases before federal courts, etc.
  O O Top of Page
ODPHP National Health Information Center (800) 336-4797
Office of Cancer Communications (800) 422-6237
Office of Minority Health Resource Center (800) 444-6472
Orton Dyslexia Society (800) 222-3123
OSAP National Clearinghouse for Alcohol and Drug Information (800) 729-6686

(800) 487-4889 (TDD)

  P P Top of Page
Parents Education Network (800) 522-5827
Parkinson's Disease Foundation, Inc. (800) 457-6676
Parkinson's Educational Program (800) 344-7872
Parkside Medical Services Corporation (800) 727-5743
Phoenix Society – Burns (800) 888-2876
Phoenix Society for Burn Survivors, Inc. (800) 888-2876
Prader-Willi Syndrome Association (800) 926-4797
PsychINFO (800) 336-4980
  Q Q Top of Page
  R R Top of Page
Recording for the Blind (800) 221-4792
Resource Center (800) 544-3284
Retinitis Pigmentosa Foundation (800) 683-5555

(410) 225-9400 (in MD) (410) 225-9409 (TDD)

RP Foundation Fighting Blindness (800) 638-2300
Rural Institute on Disabilities (Montana University Affiliated Program) (800) 732-0323 (V/TDD)
  S S Top of Page
Services (800) 368-1019
Shriners Hospital for Crippled Children (800) 237-5055

(800) 282-9161 (in FL)

Social Security Administration (800) 772-1213

(800) 325-0778 (TDD) (800) 392-0812 (TDD; in MO)

Spina Bifida Association of America (800) 621-3141
Stuttering Foundation of America (800) 992-9392
Stuttering Resource Foundation (800) 232-4775
Sudden Infant Death Syndrome Alliance (800) 221-7437
Sunshine Foundation (800) 767-1976
  T T Top of Page
Terri Gotthelf Lupus Research Institute (800) 825-8787
Tourette Syndrome Association 1(800) 237-0717
TRIPOD (Information for parents of deaf children) 1(800) 352-8888 (V/TDD)

1(800) 346-8888 (V/TDD; in CA)

  U U Top of Page
U.S. Architectural and Transportation Barriers Compliance Board Access Board (800) 872-2253

(202) 728-5483 (TDD)

U.S. Department Of Housing and Urban Development HUD User (800) 245-2691
U.S. Office of Educational Research and Improvement (800) 424-1616
United Cerebral Palsy Associations (800) 872-5827 (V/TDD)
United Leukodystrophy Foundation (800) 728-5483
United Ostomy Association (800) 826-0826
United Scleroderma Foundation (800) 722-4673
University Microfilms International (800) 521-0600
  V V Top of Page
Jun98 Vent User's Support Page "A site specifically for the ventilator dependent adult by a vent user "
VISION Foundation, Inc. (800) 852-3029
Visiting Nurse Association of America (800) 426-2547
  W W Top of Page
Jun98 WAPD World Association of People with Disabilities (WAPD) 13031 Park Crossing, Suite 3101 San Antonio, Texas WAPD e-mail
Washington (state) Protection and Advocacy System Our mission is to advance the dignity, equality, self-determination, and expressed choices of people with disabilities eligible for our services. We pay particular attention to people from diverse cultures, and work to promote, expand and protect human and legal rights through the use of direct representation, information and referral, systems advocacy, and training.

1401 East Jefferson Street, Suite 506 Seattle, WA 98122

(Voice and *TTY accessible)

For Legal Advocacy:

800-562-2702
206-324-1521
FAX: 33-206-324-1783

For Training, Publications, or Systemic Advocacy:
800-325-1801 206-325-1766

Jun98 World Health Organization Keywords: Health; PolioLink to homepage of World Health Organization.
  X X Top of Page
  Y Y Top of Page
  Z Z Top of Page
Zebley Implementation Project (800) 523-0000

(215) 893-5356 (V; Philadelphia Metro Area)