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Directories |
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Nov98 |
Organizations:
Neurological Disorders |
Names, addresses, and phone numbers for the
organizations listed in this guide are accurate as of November 1998. If you are unable to
reach a particular organization because of a change in phone number or address, please
contact the National Institute of
Neurological Disorders and Stroke, National Institutes of Health, Bethesda, MD 20892,
and we will assist you. |
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Jun98 |
AASK |
AASK America/Aid to Adoption
of Special Kids. At AASK Midwest Adoption Exchange, we have made it our mission to
find permanent, loving, adoptive homes for the children who wait. To date, AASK Midwest
has matched over 1400 special needs children with adoptive families. 1025 N. Reynolds
Rd.Toledo, OH 43615. Keywords:
Children; Adoption |
(800) 232-2751 AASK e-mail 419-534-3350
fax 419-534-2995 |
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Jun98 |
Access Group for Children of
Vietnam Veterans |
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(800) 821-8580 |
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Jun98 |
ADAPT |
AMERICAN DISABLED for
ATTENDANT PROGRAMS TODAY. Great Logo. There's no place like home, and we mean real
homes, not nursing homes. We are fighting so people with disabilities can live in the
community with real supports instead of being locked away in nursing homes and other
institutions. Very active lobbying group. PO Box 9598 Denver, CO 80209 303/333-6698 Keywords: disAbility; seniors; nursing homes; home
health care; attendants |
ADAPT e-mail |
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ADA Disability and Business
Technical Assistance Ctrs. |
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(800) 949-4232 (V/TTY) |
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Adventures in Movement for the
Handicapped Inc. |
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(800) 332-8210 |
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Jun98 |
AgeNet |
UK site for aging people with
disabilities. Keywords: Seniors |
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Al-Anon Family Group
Headquarters, Inc. |
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(800) 344-2666 |
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Alcoholism and Drug Treatment
Addiction Center |
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(800) 383-4357 |
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Alliance of Genetic Support
Groups |
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(800) 336-4363 |
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Alzheimer's Disease Association |
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(800) 621-0379 |
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American Association for
Vocational Instructional Materials |
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(800) 228-4689 |
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American Association of Kidney
Patients |
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(800) 749-2257 |
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American Association on Mental
Retardation |
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(800) 424-3688 |
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American Brain Tumor Association |
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(800) 886-2282 |
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American Burn Association |
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(800) 548-2876 |
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American Council of the Blind |
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(800) 424-8666 (V/TDD) |
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American Diabetes Association |
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(800) 582-8323 |
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American Diabetes Association,
Inc. |
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(800) 232-3472 |
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American Foundation for the Blind |
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(800) 232-5463 |
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American Kidney Fund |
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(800) 638-8299 |
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American Liver Foundation |
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(800) 223-0179 |
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American Lupus Society |
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(800) 331-1802 |
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American Paralysis Association |
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(800) 526-3456 |
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American Parkinson Disease
Association |
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(800) 223-2732 |
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American Society for Deaf
Children |
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(800) 942-2732 (V/TDD) |
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American Trauma Society |
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(800) 556-7890 |
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Jun98 |
American with Disability |
Personal site. Good Links to wide
variety of disability related government and private resources, equipment, etc.. Keywords: Government; Resources; Adaptive Devices;
Adaptive Technology; personal site |
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Amyotropic Lateral Sclerosis
Association |
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(800) 782-4747 |
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Arc |
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(800) 433-5255 |
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ARCH National Resource Center for
Respite & Crisis care services |
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(800) 473-1727 |
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Association for Childhood
Education International |
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(800) 423-3563 |
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Association on Higher Education
and Disability (AHEAD) |
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(800) 247-7752 |
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Asthma and Allergy Foundation of
America |
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(800) 727-8463 |
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C |
C |
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Jun98 |
Californians for Disability Rights |
Together ... for access, for
justice, for equality, for independence. Based in Davis, CA. Keywords: Independence; legal; advocacy; equality |
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Candlelighters Childhood Cancer
Foundation |
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(800) 366-2223 |
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Carnegie Library for the Blind
& physically handicapped |
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(800) 242-0586 |
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Jun98 |
CD Publications |
Since 1961, Newsletter
Specialists in: Housing, Senior Issues, Community Development, Federal and Private Funding
Reports, Minority Business, Business,Legal. Keywords: Funding; Grants; Grant Writing; Minorities; Legal |
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CDC National AIDS Clearinghouse |
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(800) 458-5231 (English/Spanish) (800)
243-7012 (TDD) |
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CDC National AIDS Hotline |
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(800) 342-2437 (800) 344-7432
(Spanish) (800) 243-7889 (TDD) |
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Children |
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(800) 922-1107 |
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Children's Craniofacial
Association |
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(800) 535-3643 |
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Children's Hospice International |
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(800) 242-4453 (V/TDD) |
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Chronic Fatigue and Immune
Dysfunction Syndrome Association |
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(800) 442-3437 |
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Clearinghouse for Rehabilitation
and Technology Information |
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(800) 638-8864 (800) 852-2892
(TDD) |
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Clearinghouse on Child Abuse and
Neglect/Family Violence Information |
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(800) 394-3366 |
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Cleft Palate Foundation |
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(800) 242-5338 |
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Jun98 |
Colo. Easter Seals: Disability |
Colorado Easter Seals Disability
Directory of resources (nationwide). Includes info for disabled farmers, sub-directories
by type of disability, adaptive technology, etc. On same site as post-polio page. Keywords: Farmers; Adaptive Devices; Adaptive
Technology |
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Cooley's Anemia Foundation |
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(800) 221-3571 (800) 522-7222
(in NY) |
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Cornelia de Lange Syndrome
Foundation |
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(800) 223-8355 (800) 753-2357
(in CT) |
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Cystic Fibrosis Foundation |
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(800) 344-4823 |
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Deafness Research Foundation |
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(800) 535-3323 (V/TDD) (212)
684-6559 (V/TDD) in NY) |
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EAR Foundation |
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(800) 545-4327 |
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Epilepsy Foundation of America |
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(800) 332-1000 |
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Equal Employment Opportunity
Commission |
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(800) 669-3362 (800) 800-3302
(TDD) |
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ERIC Clearinghouse on Rural
Education and Small Schools |
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(800) 624-9120 (800) 344-6646
(V; in WV) |
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F |
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FACES National Association for
the Craniofacially Handicapped |
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(800) 332-2373 |
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Families of SMA |
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(800) 886-1672 |
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Family Survival Project |
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(800) 445-8106 |
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Federal Hill-Burton Free Hospital
Care Program |
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(800) 638-0742 (800) 492-0359
(in MD) |
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Feingold Association of the
United States |
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(800) 321-3287 |
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Gerber Consumer Information |
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(800) 443-7237 |
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Guide Dog Foundation for the
Blind, Inc. |
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(800) 548-4337 |
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Hadley School for the Blind |
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(800) 323-4238 |
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Healing |
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(800) 762-3334 |
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HEALTHSOUTH Rehabilitation
Corporation |
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(800) 768-0018 |
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Hear Now |
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(800) 648-4327 (V/TDD) |
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Hearing Information Center |
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(800) 622-3277 |
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HEATH Resource Center |
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(800) 544-3284 (V/TDD) (202)
939-9320 (V/TDD; in DC) |
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Hemophilia and AIDS/HIV Network
for Dissemination of Information |
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(800) 424-2634 |
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HOSPICELINK |
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(800) 331-1620 (203) 767-1620
(V; in CT) |
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HUD User |
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(800) 245-2691 |
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Human Growth Foundation |
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(800) 451-6434 |
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Information |
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(800) 394-3366 |
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Jun98 |
International Ventilator Users
Network (IVUN) |
no website found yet |
IVUN e-mail |
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J |
J |
Top of
Page |
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Job Accommodation Network |
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(800) 526-7234 (V/TDD) (800)
232-9675 (V/TDD; ADA Information) |
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Job Opportunities for the Blind |
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(800) 638-7518 (410) 659-9314
(in MD) |
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John Tracy Clinic - hearing |
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(800) 522-4582 (V/TDD) (213)
748-5481 (in 213 area)
(213) 747-2924 (TDD; in 213 |
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Just Say No International |
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(800) 258-2766 |
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K |
K |
Top of
Page |
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Kids on the Block - disability
awareness |
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(800) 368-5437 |
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L |
L |
Top of
Page |
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Leukemia Society of America |
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(800) 955-4572 |
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Lighthouse National Center for
Vision and Child Development |
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(800) 334-5497 (212) 808-5544
(TDD) |
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LINC Resources, Inc. |
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(800) 772-7372 |
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Little People of America |
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(800) 243-9273 |
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Lupus Foundation of America |
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(800) 558-0121 (800) 558-0231
(Spanish) |
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M |
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Page |
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Magic Foundation |
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(800) 362-4423 |
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Myasthenia Gravis Foundation |
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(800) 541-5454 TDD |
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N |
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Page |
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Medico Head Injury System |
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(800) 227-3824 |
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National AIDS Hotline |
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(800) 342-2437 |
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National AIDS Information
Clearinghouse |
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(800) 458-5231 |
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National Alliance for the
Mentally Ill |
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(800) 950-6264 |
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National Alliance of Blind
Students |
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(800) 424-8666 |
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National Association for Hearing
and Speech Action |
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(800) 562-6265 |
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National Association for Sickle
Cell Disease |
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(800) 421-8453 |
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National Association for the
Dually Diagnosed |
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(800) 331-5362 |
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National Association of Parents
of the Visually Impaired |
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(800) 562-6265 |
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National Audiovisual Center |
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(800) 638-1300 |
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National Cancer Information
Service |
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(800) 422-6237 (V;
English/Spanish) |
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National Center for Research in
Vocational Education |
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(800) 762-4093 |
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National Center for School
Leadership |
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(800) 643-3205 |
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National Center for Stuttering |
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(800) 221-2483 (800) 729-6686,
(800) |
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National Center for Youth with
Disabilities |
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(800) 333-6293 (612) 624-3939
(TDD) |
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National Clearinghouse of
Rehabilitation Training Materials |
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(800) 223-5219 (V/TDD) |
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National Clearinghouse on Family
Support and Children's Mental Health |
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(800) 628-2696 |
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National Committee for Citizens
in Education Clearinghouse |
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(800) 638-9675 (800) 532-9832
(Spanish) |
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National Down Syndrome Congress |
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(800) 232-6372 |
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National Down Syndrome Society |
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(800) 221-4602 |
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National Easter Seal Society |
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(800) 221-6827 (312) 726-4258
(TDD) |
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National Eye Care Project |
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(800) 222-3937 |
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National Foundation for Consumer
Credit |
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(800) 388-2227 |
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National Foundation for Facial
Reconstruction |
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(800) 422-3223 |
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National Fragile X Foundation |
|
(800) 688-8765 |
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National Head Injury Foundation |
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(800) 444-6443 |
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National Headache Foundation |
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(800) 843-2256 (800) 523-8858 |
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National Hearing Aid Society |
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(800) 521-5247 |
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National Hospice Organization |
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(800) 658-8898 |
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National Information Center on
Orphan Drugs and Rare Diseases |
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(800) 456-3505 |
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National Information
Clearinghouse for Infants with Disabilities and Life Threat |
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(800) 922-9234 ext. 201 (V/TDD)
(800) 922-1107 ext. 201 (V/TDD; in SC) |
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National Information System for
Vietnam Veterans and Their Families |
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(800) 922-9234 ext. 401 (V/TDD) (800)
922-1107 disABILITY ext. 401 (V/TDD) |
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National Institute on Deafness
and Other Communication Disorders Clearinghouse |
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(800) 241-1044 (800) 241-1055
(TDD) |
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National Institute on Drug Abuse
Helpline |
|
(800) 662-4357 |
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National Jewish Center for
Immunology and Respiratory Medicine LUNGLINE |
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(800) 222-5864 |
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National Literacy Hotline |
|
(800) 228-8813 (800) 552-9097
(TDD) |
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National Lymphedema Network |
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(800) 541-3259 |
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National Mental Health
Association |
|
(800) 969-6642 |
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National Multiple Sclerosis
Association of America |
|
(800) 532-7667 |
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National Multiple Sclerosis
Society |
|
(800) 344-4867 |
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National Neurofibromatosis
Foundation |
|
(800) 323-7938 |
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National Odd Shoe Exchange |
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(800) 843-1964 |
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National Organization for
Albinism and Hypopigmentation |
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(800) 473-2310 |
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National Organization for Rare
Disorders |
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(800) 999-6673 (V/TDD) |
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National Parkinson Foundation |
|
(800) 327-4545 |
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National Rehabilitation
Information Center |
|
(800) 346-2742 |
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National Rehabilitation
Information Clearinghouse/ABLEDATA |
|
(800) 346-2742 (V/TDD) |
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National Resource Center on Child
Sexual Abuse |
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(800) 543-7006 |
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National Respite Locator Services
- 1700+ Agencies across the country |
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(800) 773-5433 |
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National Retinitis Pigmentosa
Foundation |
|
(800) 638-2300 |
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National Reye's Syndrome
Foundation |
|
(800) 233-7393 |
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National Society to Prevent
Blindness |
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(800) 331-2020 |
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National Spinal Cord Injury
Association |
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(800) 962-9629 |
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National Tuberous Sclerosis
Association |
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(800) 225-6872 |
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Jun98 |
Natl
Academy of Child Development |
2 The National Academy for Child Development, is an international
organization of parents and professionals dedicated to helping children and adults reach
their full potential. The over 15,000 clients served by NACD have come to us with labels
including; Learning Disabled, Dislexic, Distractible, ADD, ADHD, Hyperactive, Down
Syndrome, Gifted, etc |
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North American Riding for the
Handicapped Inc. |
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(800) 369-7433 |
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Jun98 |
Not Dead Yet |
Website of an organization
opposing euthanasia for the disabled, and the assisted suicide movement in general. Good
information. News articles on quality of life of Kevorkian's "patients", legal
euthanasia cases before federal courts, etc. |
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O |
O |
Top of
Page |
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ODPHP National Health Information
Center |
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(800) 336-4797 |
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Office of Cancer Communications |
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(800) 422-6237 |
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Office of Minority Health
Resource Center |
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(800) 444-6472 |
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Orton Dyslexia Society |
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(800) 222-3123 |
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OSAP National Clearinghouse for
Alcohol and Drug Information |
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(800) 729-6686 (800) 487-4889
(TDD) |
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P |
P |
Top of
Page |
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Parents Education Network |
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(800) 522-5827 |
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Parkinson's Disease Foundation,
Inc. |
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(800) 457-6676 |
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Parkinson's Educational Program |
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(800) 344-7872 |
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Parkside Medical Services
Corporation |
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(800) 727-5743 |
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Phoenix Society – Burns |
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(800) 888-2876 |
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Phoenix Society for Burn
Survivors, Inc. |
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(800) 888-2876 |
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Prader-Willi Syndrome Association |
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(800) 926-4797 |
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PsychINFO |
|
(800) 336-4980 |
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Q |
Q |
Top of
Page |
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R |
R |
Top of
Page |
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Recording for the Blind |
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(800) 221-4792 |
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Resource Center |
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(800) 544-3284 |
|
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Retinitis Pigmentosa Foundation |
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(800) 683-5555 (410) 225-9400
(in MD) (410) 225-9409 (TDD) |
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RP Foundation Fighting Blindness |
|
(800) 638-2300 |
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Rural Institute on Disabilities
(Montana University Affiliated Program) |
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(800) 732-0323 (V/TDD) |
| |
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S |
S |
Top of
Page |
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Services |
|
(800) 368-1019 |
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Shriners Hospital for Crippled
Children |
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(800) 237-5055 (800) 282-9161
(in FL) |
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Social Security Administration |
|
(800) 772-1213 (800) 325-0778
(TDD) (800) 392-0812 (TDD; in MO) |
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Spina Bifida Association of
America |
|
(800) 621-3141 |
|
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Stuttering Foundation of America |
|
(800) 992-9392 |
|
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Stuttering Resource Foundation |
|
(800) 232-4775 |
|
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Sudden Infant Death Syndrome
Alliance |
|
(800) 221-7437 |
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Sunshine Foundation |
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(800) 767-1976 |
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T |
T |
Top of
Page |
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Terri Gotthelf Lupus Research
Institute |
|
(800) 825-8787 |
|
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Tourette Syndrome Association |
|
1(800) 237-0717 |
|
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TRIPOD (Information for parents
of deaf children) |
|
1(800) 352-8888 (V/TDD) 1(800)
346-8888 (V/TDD; in CA) |
| |
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U |
U |
Top of
Page |
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U.S. Architectural and
Transportation Barriers Compliance Board Access Board |
|
(800) 872-2253 (202) 728-5483
(TDD) |
|
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U.S. Department Of Housing and
Urban Development HUD User |
|
(800) 245-2691 |
|
|
U.S. Office of Educational
Research and Improvement |
|
(800) 424-1616 |
|
|
United Cerebral Palsy
Associations |
|
(800) 872-5827 (V/TDD) |
|
|
United Leukodystrophy Foundation |
|
(800) 728-5483 |
|
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United Ostomy Association |
|
(800) 826-0826 |
|
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United Scleroderma Foundation |
|
(800) 722-4673 |
|
|
University Microfilms
International |
|
(800) 521-0600 |
| |
|
V |
V |
Top of
Page |
|
Jun98 |
Vent User's Support Page |
"A site specifically for the
ventilator dependent adult by a vent user " |
|
|
|
VISION Foundation, Inc. |
|
(800) 852-3029 |
|
|
Visiting Nurse Association of
America |
|
(800) 426-2547 |
| |
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W |
W |
Top of
Page |
|
Jun98 |
WAPD |
World Association of People with
Disabilities (WAPD) 13031 Park Crossing, Suite 3101 San Antonio, Texas |
WAPD
e-mail |
|
|
Washington (state)
Protection and Advocacy System |
Our mission is to advance the
dignity, equality, self-determination, and expressed choices of people with disabilities
eligible for our services. We pay particular attention to people from diverse cultures,
and work to promote, expand and protect human and legal rights through the use of direct
representation, information and referral, systems advocacy, and training. 1401 East
Jefferson Street, Suite 506 Seattle, WA 98122 |
(Voice and *TTY accessible) For
Legal Advocacy:
800-562-2702
206-324-1521
FAX: 33-206-324-1783
For Training, Publications, or Systemic Advocacy:
800-325-1801 206-325-1766 |
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Jun98 |
World Health Organization |
Keywords: Health;
PolioLink to homepage of World Health Organization. |
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X |
X |
Top of
Page |
| |
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Y |
Y |
Top of
Page |
| |
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Z |
Z |
Top of
Page |
|
|
Zebley Implementation Project |
|
(800) 523-0000 (215) 893-5356
(V; Philadelphia Metro Area) |
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